Oct
3
2008

Feeding Tube Craziness

Friday October 3, 10:00 PM

I took my Sisters family and my Parents to the airport this morning.  After I got home, this mornings feeding started an interesting chain of events.  As we were putting a sleeping Lilee back into her crib her feeding tube snagged something on her crib and the entire thing just slid right out.  I remember thinking after I saw what had happened "that was pretty easy" and I wondered why it hasn't come out before.  My guess is its all about the tape that holds it on the face and over the past few days sponge baths and messy feedings must have worn away at the sticky side which caused everything to get loose.

Afton was going to pick up her Dad from the airport so I took Lilee to the hospital.  I should just state here that it was pretty awesome to look at her without her tube in.  If it weren't for that darned tube you would be hard pressed to know she has anything wrong with her.  But I digress - the nurses at the hospital are very good at getting the feeding tube in.  In fact if I didn't know any better after watching them do it I could probably do it myself.  Basically they mark the line for length (so they know when to stop pushing).  Then they lube the end of the line insert in the nostril of choice and push.  When they reach the tape mark they stop pushing.  They then take a stethoscope place it on her belly and inject air through the tube into the stomach.  If it gurgles they know they went down the right tube if it doesn't they pull it out and try again.  See - if I didn't know any better I could do it myself!

After that quick and painless feeding tube fix, Lilee and I got back into the car to come home she was happy as can be.  That was until we were about a mile from home when she decided things were not OK and she really didn't want that feeding tube in.  So she started crying and then sneezing and silence.  When I looked back there she was looking back at me WITHOUT THE FEEDING TUBE IN!!!  That little bugger sneezed out the tube and earned herself a trip back to the hospital.  Afton and her parents were able to go the second time and from the looks of the new feeding tube completely enjoyed themselves.  That thing is taped to the neck, the cheek and the nose.  Even a good tug would not rip that one out.

On top of all this feeding tube excitement we took Lilee to her first church activity.  It was our annual pie and chili cook off.  Many of you reading this might think we are crazy for taking her to such a public place but we were careful.  Lilee stayed in a little room where only a few people came in to visit.  By and large few people even knew she was there.  Honestly it was nice to get out and do something different.

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About the author

I am the proud father of 6 Children (5 girls and 1 poor boy).  Our second youngest daughter was born with a heart condition called Hypoplastic Left Heart Syndrome (HLHS).  In a nutshell the left side of her heart never fully developed.  Hopefully this site will chronicle the progress she is making and everyone who is interested can keep up to date.